Wednesday, October 21, 2009

An unexpected complication...

Hi all- this is Soni (Cara's sister). We all met with a team of doctors today. We were expecting them to tell us what day they would be doing Lincolns surgery- presumably either this Friday, or next Monday. But after all the cardiologists met together and discussed the complexities of Lincolns heart condition they recommended he be transferred to a larger facility with more experience with these particular defects. (Specifically, in addition to the transposition of the greater arteries we already mentioned, he also has a hole between the ventricles that will need repaired, and the most serious complication is a small aorta that will have to be repaired and moved.) Possible locations were Texas, Michigan, Pennsylvania, or Stanford, CA. So, after much careful consideration Lincoln will be transported with a medical team via LifeFlight to Stanford- probably early next week.

Cara and Will tentatively plan to drive down to Stanford and stay there as long as needed.(~3 weeks?) The hospital social worker has been very helpful in arranging for financial assistance (hopefully Medicaid will kick in) and will help arrange lodging at a Ronald McDonald house near the hospital. Theoretically, once Lincoln has stabilized after the surgery he will be transferred back to Primary Childrens Hospital in SLC for the remainder of his recovery.

They are both doing well under the circumstances, but please continue to keep them in your thoughts and prayers during this difficult time.

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